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Communicating your needs as a person with disabilities.

14/9/2014

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So, how do we do this ?

This post has come out of an event I attended today. In respect of the whole idea of the event I will not give information as to the details but I will say how difficult it was for me as a person with Aspergers, an Autism Spectrum Disorder and how difficult it was for me to communicate my needs and be taken seriously.

As a result of not being listened to I had to leave and this is not fair on a disabled person who to come out of their cave in the first place and do something that is terribly frightening to them only to be forced back in by people who dont care is beyond belief.

We need to stop this ignorance and when a person with disabilities communicates their needs not to 1, but 2 people it needs to be listened to.

A person with aspergers or an autistic spectrum disorder is severely affected by the light / colours / flashing stuff / heat or cold / new people, and noise.

One or two of these things at once and we can handle it, if we prepare we can do it even better, the more we visualise and the more we know about the situation we are going into the better we function.

I went into the situation knowing the place (id google mapped it) the area (i used to work there) and the people, i even knew the process that the day would take and i went with a freind, however. ....

When i arrived i was split up from my freind, i was put at a table with direct sunlight and along with the noise this lead me to overload.


However just before overload, I asked 2 seperate people to please move me out of the direct sunglight, one said no, and the other didnt really listen to me and just moved my chair slightly.

So as it turned out I lasted 5 minutes, had nothing to eat and left in a frazzld state. Only to bump into the manager of the hotel who was completly arrogant and totally not disabled freindly.

So ive missed a great day and feel sad.

So how do we overcome this ?

I prepared, I told, I asked for help but I wasnt listened to ?

So what is the answer ...... Im asking as I need to know so that I can look at putting together some kind of course in communication for disabled people in Cornwall to get the help they need when mixing within the NT world. please reply to claire@sunshineandshowers.co.uk

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